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September 2012 Observer

VOICE OF PHILOPTOCHOS on Page 7

 

 

Alzheimer’s Disease: Awareness, Understanding, Support and Care

The mission of our Philanthropic Initiative for Alzheimer’s Disease is to promote awareness regarding the many facets of this disease as well as to help those individuals afflicted by this terrifying disease and those that love and care for them. Of the top 10 causes of death in America, Alzheimer’s is the only disease without any effective treatment or cure. The committee has gathered educational information from organizations, such as the Alzheimer’s Association, the Bright Focus Foundation, and the Women’s Alzheimer’s Movement founded by Maria Shriver, as well as collected materials from books, videos, and websites. It is our goal that all of this information will assist our community in caring for their loved ones with Alzheimer’s Disease, who cannot advocate for themselves. We hope a cure will soon be found for this tragic disease.


Alzheimer's Disease:

Awareness, Understanding, Support and Care

Click the above image for the PowerPoint.

Click here for a PDF version of the presentation.


TED Talks: Samuel Cohen “Alzheimer’s Is Not Normal Aging -- and We Can Cure It”

 


TED Talks: Lisa Genova “What You Can Do To Prevent Alzheimer’s”

 


Resources

Alzheimer’s Prevention

Additional articles on Prevention can be found at the following link:

http://thewomensalzheimersmovement.org/prevention/

Helpful Resources for People Living with Alzheimer's Disease

This page provides resources and information about products, services, and other support for people with Alzheimer's disease and their families can be found on this website: https://www.brightfocus.org/alzheimers/organizations

On this page, you'll find resources and information regarding:

  • Professional Services
  • Legal Assistance
  • Financial Assistance
  • Federal Government Programs and Services
  • Prescription Assistance Programs
  • Safety and Home Healthcare
  • Travel
  • Caregiving and Caregiver Support
  • Long-Term Care and Living Options
  • Hospice Care

Resources for Caregivers

Additional articles on Caregiving and helping Caregivers can be found at the following link:

http://thewomensalzheimersmovement.org/caregiving/ 


Recommended Books

The 36-Hour Day:  A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss 

by Nancy L. Mace and Peter V. Rabins    

This fifth edition is a comprehensive guide to caring for people who have Alzheimer's disease.  This new edition provides the latest information on the causes of dementia, behavioral issues, resources and support groups. It also discusses the need for caregivers to find respite care and offers guidance for family members seeking living arrangements for their loved one when home care is no longer an option. Finally, the book offers advice regarding the financial and legal matters family must address. This book also includes information about problems that arise in daily care, handling an impaired person's suspicion and anger, how to get support, and the financial and legal matters you must address. Written by experienced authorities in the field, it is an all-time best seller in its field.

Flying to the Moon: A Mother and Daughter’s Journey Through Alzheimer’s

by Jennifer Blackmore

Flying to the Moon is the personal story of a young woman’s journey with her beloved mother through Alzheimer’s disease. The book describes the effects that this debilitating disease had on both the victim and her loved one. Jennifer shares her emotions as she realizes that her mother is not the woman she once admired. Alzheimer’s disease took away Jennifer’s mother’s life, but through the struggle, gave both Jennifer and her mother a newfound affection for each other. The book touches on universal themes of loss, survival and empowerment.

Poignant, honest and inspiring, Flying to the Moon offers hope to everyone affected in some way by this tragic condition. 

Still Alice

by Lisa Genova

In this extraordinary New York Times bestselling novel, an accomplished, 50 year old professor diagnosed with Early-Onset Alzheimer’s disease learns that her worth is comprised of more than her ability to remember. Writing in the third person, Genova gets inside of Alice’s head as she goes about her day, while also describing non-afflicted peoples’ reaction to her increasingly bizarre and unsettling behavior. Through this technique, the reader gets an inside view of the duality of the disease.

Now a major motion picture from Sony Pictures Classics starring Julianne Moore, Alec Baldwin, Kate Bosworth and Kristen Stewart

* Any medical or health care or other education information on this page is intended to provide information and is not intended to provide medical consultation regarding the diagnosis, management or treatment of any patient or illness, nor is it intended as a substitute for the professional judgment of a physician or other health care provider.